Monica Weldon, BS

Bridge the Gap - SYNGAP Education and Research Foundation

In November of 2012, Monica's twin son, Beckett, was the first six patients in the world to be diagnosed with the gene mutation SYNGAP1 (6p21.3). Monica began a journey to find answers to help her son. She started to blog about his progress and this led to building a community of parents and caregivers that are now a strong support group.
She retired in 2016 after 23 years in education teaching secondary science. Her new focus is on building the programs and mission of Bridge the Gap – SYNGAP Education and Research Foundation. She is the Primary Investigator on the SYNGAP1 (MRD5) Registry and Natural History Study. She is a life member of the Worldwide Association of Female Professionals and a member of the first class of 2017 Illumina Ambassadors established in the United States. In addition to leading the foundation, she is an author, public speaker, consultant and advocates for rare disease legislation at both the federal and state levels. Several of her authored scientific publications that include Nature Neuroscience, The Journal of Neurodevelopmental Disorders, and The Journal of Pediatrics. She has authored a book about her son Beckett’s diagnostic journey called “My Special Boy - Slow Moving Stream”. She is a graduate from East Texas Baptist University with a Bachelor's of Science in Biology/Psychology (1991) and Secondary Certification in Education (1995). She is the wife of Chris Weldon and has five beautiful children, Haleigh (27), Taylor, USMC (24), Sawyer (22), and the twins Beckett & Pyper (11).

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