Neurological Rare Diseases & Neglected Tropical Diseases: Can Shared Challenges Inform Common Solutions?
Date/Time: Monday, October 14, 2019 - 11:30 AM – 12:30 PM
Level: Interactive Lunch Workshop
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The neurological burden of disease due to rare diseases (aggregated) and neglected tropical diseases (NTDs) affect millions globally yet both entities are largely grossly under-resourced in terms of the capacity for reasonable clinical care provision proximate to the patients and funding to improve diagnostics, delineate optimal care models and drive the development of much-needed therapies. The US Food and Drug Administration has special programs aimed at stimulating/facilitating treatments for rare diseases and NTDs that have already yielded benefits. Shared challenges in our efforts to advance the understanding of and care for these conditions include the imperative to engage a broad group of stakeholders, including other scientists, regarding the associated neurological burdens and the need to stimulate investment in discovery where traditional market forces fail. In this session we will explore the burdens associated with rare diseases and NTDs with a special emphasis on shared challenges and possible common solutions.
To understand the aggregate neurological burden of rare diseases
To appreciate the neurological burden encompassed within the Neglected Tropical Diseases, within the World Health Organization's framework of NTDs
To learn about the challenges in care delivery and research for each